Chapter 386: Are There Any Complications that Are Not Covered?
"This..."
Listening to Chen Mu's words, Su Bingbing was a little stunned.
Haicheng University.
Although it is not a top-notch university in China, it is at least a very good school in the province.
Two university professors.
This is definitely a job and life that most people would envy.
But what's the use?
Because of giving birth to two unhealthy children, even such a university professor's life will become a mess from now on.
Substitute the two professors.
It's hard for Su Bingbing to imagine.
If the person involved was herself, would she have the courage to face all this.
But...
Su Bingbing's eyes fell on the white hair on Gu He's head.
She could see it.
Although Gu He is an albinos, Gu He is well taken care of by his parents.
Gu He is taken care of so well by his parents, then Gu He's sister should also be well taken care of by this family.
After all.
That is a girl who is loved by the whole family.
Chen Mu has been explaining the situation of Gu He's family.
Speaking of this.
Chen Mu couldn't help but look at Gu He again.
He knew it well.
The program he was participating in recording was quite popular online.
And Gu He's sister's condition.
Once it was announced in front of the live camera, Gu He's family, as well as the conditions of their brother and sister, would get public attention.
Even.
Because Gu He's words were too distressing.
Just now.
Chen Mu also quietly contacted Gu He's parents on WeChat.
Confirm that everything was as Gu He said.
Whether to really talk about the two children's conditions in front of the live camera.
Finally.
The answer Chen Mu got from Gu He's parents was.
Everything was up to Gu He.
Chen Mu was watching Gu He and giving Gu He a chance.
Next.
Whether their family would have to face public opinion from all over the country.
The decision-making power.
All handed over to this boy who had just turned 18.
Seeing Gu He's attitude, it was the same as always.
Chen Mu sighed: "Gu He's sister was diagnosed with Kabuki syndrome when she was three and a half years old."
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"Kabuki syndrome? What is that disease? I don't think I've ever heard of it."
"How should I put it? This disease means that people are good-looking, mentally retarded, and developmentally delayed."
"How good-looking can they be?"
"Patients with Kabuki syndrome give people the feeling of wearing heavy makeup, but these patients are basically discovered in toddlers and children."
"Generally speaking, except for kindergarten activities, competitions, and photo shoots, infants and young children rarely wear makeup."
"My friend's daughter is one and a half years old and looks as good as if she had worn delicate makeup. Should I remind her to go to the hospital for a check-up?"
"No need to remind me. I'm already holding her. The child is on the way to the hospital, and I dare not delay for a second. "
"According to what Dr. Chen said before, this disease cannot be cured for life. A very beautiful child may only be a child with mental retardation for life?"
"To put it more sadly, patients with albinism may still have a lifetime, but patients with Kabuki syndrome may not be able to have a lifetime as we understand it, and it is easy to die..."
"Many times, the parents of patients try every means to find a doctor, but they can only let the children live for a while longer."
"Although I guessed that this disease may be troublesome, what you said is still far beyond my understanding."
"..."
-
"Kabuki syndrome?"
Rao Su Bingbing roughly guessed it when she saw Gu He's attitude.
Gu He's sister's situation may not be optimistic.
But after really hearing what the disease is.
It is still inevitable to be a little surprised.
A few years ago.
When she was doing a show in the emergency room of the hospital, she once saw a patient with Kabuki syndrome.
At first.
She was attracted by the little girl's appearance.
The little girl's appearance was even more eye-catching than some famous child stars in the circle.
But later.
During the process of the emergency doctor examining the little girl.
He learned about the disease of Kabuki Syndrome.
Seeing Su Bingbing's big reaction, Chen Mu was also stunned.
Then he was a little surprised: "Reporter Su, do you know about Kabuki Syndrome?"
Many family members of patients heard of such a disease for the first time.
Su Bingbing nodded: "I have met such a patient before. How is the disease of classmate Gu He's sister under control?"
Under the camera.
Gu He sneered: "What else can we do? It is almost impossible to make her a normal person."
"In addition, my sister was a premature baby back then."
"Weak body, combined with the weak resistance of Kabuki Syndrome itself, prone to various complications, it is not an exaggeration to say that we are frequent visitors to the hospital emergency room."
When he was young.
In his memory, his parents either took him to seek medical treatment everywhere.
Or...
He was in the hospital, treating the disease.
Finally, his condition stabilized.
I can barely live like a normal person, and even take the college entrance examination.
I got into a pretty good university.
But...
What's the point...
For his sister's condition.
He still can't play any role at all...
Su Bingbing looked at Chen Mu.
Then looked at Gu He.
He roughly understood the purpose of the two people, which was nothing more than hoping to help Gu He and his sister stir up some heat on the Internet.
In this way.
It will be convenient for Gu He and his sister to seek medical treatment in the future.
Thinking of this.
Su Bingbing on the side also smiled and said: "Doctor Chen, can you tell me in detail what complications Kabuki facial syndrome will bring to patients?"
Facing Su Bingbing's smile.
Chen Mu probably knew in his heart.
Su Bingbing wanted to help Gu He and his sister in public opinion.
But thinking of Gu He's sister's condition.
Chen Mu sighed deeply again.
"Kabuki Syndrome..."
"This disease has a huge impact on the patient..."
"This disease has different degrees of impact on the patient's skin texture, cardiovascular system, respiratory system, digestive system, reproductive and urinary system, motor system, endocrine system, blood (immune system), and nervous system..."
Su Bingbing was stunned: "This..."
-
"Wow, so this disease covers all the main systems of the human body?"
"I was already surprised when I heard about the respiratory system and digestive system, and I was numb when I heard the rest."
"No wonder Gu He reacted so strongly to his sister's illness, This Kabuki syndrome is much scarier than albinism."
"They gave birth to two children, one with albinism and one with Kabuki syndrome. Is there really nothing wrong with the genes of this couple?"
"Didn't you hear what Dr. Chen said? They did all the necessary pre-pregnancy and post-pregnancy tests, and even did double tests."
"To be honest, if these two children were born in an ordinary family, they might not be able to afford medical treatment..."
"Although I haven't seen Gu He's sister yet, I'm worried about that little girl now."
"The first time I heard about Kabuki syndrome, I was shocked."
"..."